Keratoconus Support

We encourage keratoconus patients to discuss their condition openly with their eye care practitioner. Ask questions and learn as much as you can about the condition, as lack of knowledge often creates the most fear or anxiety.

It is also important that you talk freely about your condition with family, friends and employers to ensure they understand your condition. We also recommend you talk to other keratoconus patients. The mutual sharing of experiences can be very reassuring.

Importantly, keratoconus should not stop you from accomplishing your goals. People from all walks of life have experienced this disorder and succeeded!

Keratoconus Support Groups & Information

The National Keratoconus Foundation - USA www.nkcf.org
Provides information to keratoconus patients, newsletters and seminars and supports research into keratoconus.

UK Self Help & Support Group - www.keratoconus-group.org.uk
Provides information and support, information about the condition, treatment and discussion forum.

Keratoconus New Zealand - www.kcnz.co.nz
Provides an easy to read site to enable people with keratoconus and their families to gain a deeper understanding of keratoconus and the options for managing this challenging eye condition.

The Global Keratoconus Foundation - www.kcglobal.org
An organization dedicated to research and education about keratoconus.

Daily Strength - www.dailystrength.org/support/ears_eyes_mouth/keratoconus
A support group message board for keratoconus patients.

UK Keratoconus Self Help and Support Association - www.patient.co.uk/showdoc/26739506

Contact Lens Spectrum - www.clspectrum.com/article.aspx?article=11720
An article from Contact Lens Spectrum about helping keratoconus patients.

Keratoconus Group Blog - http://www.keratoconusgroup.org
Blog for Keratoconus Group, the largest community for keratoconus online. Provides stories and experiences of keratoconus patients.